How old do my children have to be before they can be tested?

Children must be at least 10 years of age and weigh more than 30kg before they can be tested. In practice we usually wait until they are 12.

What is recommended in terms of work/exercise after the muscle biopsy?

This depends on the type of work you do. A more physical job may require a longer period off work, but usually no more than a week is required.

In terms of exercise we would recommend you gradually return to your normal activities after your surgery and be guided by your level of comfort. Depending on the type and intensity of exercise you do, it can take between 2–6 weeks to get back to normal.

How long should I avoid driving?

There is no set time to avoid driving. However, you cannot drive home from your biopsy and we advise you do not drive until you have the strength to comfortably perform an emergency stop.

What if my local doctor has no knowledge of MH?

Within two weeks of your biopsy, your general practitioner and your referring doctor will be sent a copy of your results. You will also be given a copy of your results for your records. We are available to speak to any doctor who wishes to discuss your management or future anaesthetics.

A relative of mine wants to be tested for MH, what should I do?

There is a referral form on the website which you will need to fill in with your general practitioner. Alternatively their doctor can contact their local MH unit and get advice.

Can I travel overseas if I have MH?

Most developed countries have well trained anaesthetists and the necessary anaesthetic drugs and equipment to manage patients at risk of MH. In less developed countries, safe anaesthesia for patients at risk of MH cannot be guaranteed. Hospitals in those countries are also unlikely to be able to afford Dantrolene which is the antidote to MH.  Any of the Malignant Hyperthermia Units in Australia or New Zealand can give specific advice for your situation.